It’s been a while since I’ve written anything. Part of me wanted to really have a blog that talked about something super cool that could be useful to others. As I go through my most recent health challenges, I decided that I am going to blog about this journey. I can tell it’s already going to be a long one.
It’s my hope that people with autoimmune disorders and chronic pain are heard and understood. I’ve been seeing it first hand that a lot of people really don’t have much knowledge and their opinions that are mostly stated in love and lack of information can come across as hurtful or rude. Well I’m here to say sorry for all those people and hopefully I can open some eyes up to others who don’t have auto immune disease to try to understand what we go through on a daily basis
For one, we have our good days and bad days, it takes YEARS sometimes to get a diagnosis depending on the issue, people treat you like you are medication seeking (DOCTORS) when all you are seeking is some form of relief even if it’s in small increments in the day or if it gives you at least one night of good rest.
People also don’t understand that you can go a lifetime and then suddenly BOOM!! autoimmune disease rears its ugly head and it feels like things go down hill from there. It ungraciously entered my life at 38 years old.
I am an open book and I get the comment I hear often “you don’t look like you are sick.” Let me tell you, I am!
Walk through this unfiltered journey with me by supporting my blog. Some post may be transparent, maybe even a little TMI but it so important for the warrior that is in the fight to feel as though they aren’t alone and for the loving care taker to understand the pain, frustrations and emotions they simply can’t wrap their head around because let’s face it, the rollercoaster these diseases make absolutely no sense.
We aren’t lazy…
We aren’t faking…
We aren’t lying…
We are sick, beautiful on the outside but our bodies are literally at war on the inside.
Warriors you are not alone, family members and friends, be supportive or stay silent.
Happily Ever Amber 