I found these two fun facts on the internet. I decided to post them here in my blog because they resonate with me in a lot of ways.
I feel like I spend more time trying to explain how sick I am because on the outside I seem to look perfectly fine. Even when I am having trouble with walking, I get the stares, the questions, or how I’m too young to need a mobile aid to help me.
On the outside you see strength, on the inside I am falling to pieces. Sometimes my fingers are numb, my feet are burning, my muscles are so tight and spastic. I am constantly in pain. I actually haven’t felt much days without pain in the past 4 years. My muscles have grown weak, I’m always fatigued. I push through my days and crash as soon as I get home. My quality of life has been turned all the way upside down.
I’m alone. Fighting a battle all by myself. Learning alone. I’ve joined some great support groups and found some amazing resources. I would have never thought this is what 43 would be like. I would have never thought that I would be the only one in my family with this awful disease.
It’s a weight, that if the people around us would take the time to stop asking and just hear us, it would ease our distress if you just believe what we are saying isn’t a lie or a cop out to be lazy, we really do have issues.
You just have to open your limited views to see that we are telling the truth.
Happily Ever Amber 