May 9th, 2025 was the last day that I said I’ll see you again to my aunt. She’s 73 years old, so young to leave this earth, yet God called her home. She was the aunt that was involved in our lives in a major way. She and my mom were best friends, they didContinue reading “Grieving with Multiple Sclerosis”
Author Archives: Happily Ever Amber
Talking Just Isn’t The Same Anymore
The more I live out this new life with MS, I’m noticing that I’m having difficulty speaking. I could be expressing myself in conversation and lose what I wanted to say mid-sentence. There are times that in my brain I know exactly what I want to say, I can picture the words, I know whatContinue reading “Talking Just Isn’t The Same Anymore”
Fact: The Worst Feeling of MS is when my body doesn’t regulate temperature well.
Since I’m also going through menopause at 43, I had to learn the difference between a hot flash and MS heat intolerance. Both of them are miserable, both make you feel like crud. Hot flashes are shorter and they make me sweat. Heat intolerance for me is ongoing and you can feel the anxiety creepContinue reading “Fact: The Worst Feeling of MS is when my body doesn’t regulate temperature well.”
The Lie: It’s Not You It’s Me
“It’s not you, it’s me.” This is the start of the many breakup letters I’ve written out of my insecurities to my loving boyfriend. I don’t mean it. I never do. It seems like ever since MS reared its ugly head in my life, my hopes have dwindled and I’ve been consumed with insecurities. IContinue reading “The Lie: It’s Not You It’s Me”
Flu Season and MS
This is my first time having the flu diagnosed with MS. The funny thing about it (well,not really) I’ve been in a flare and while I was going to steroid infusions I started to feel like maybe I was catching a cold or that it could be sinuses. Then out of nowhere like a MacContinue reading “Flu Season and MS”
Will this be my new Normal?
I got into my car this morning and my oil light was on. Since I recently had an oil change I figured I’d go back to where I went to get it topped off and looked into. Sure enough the oil was low. The mechanic let me know that the seals in my car wereContinue reading “Will this be my new Normal?”
The Struggle is Real
I found these two fun facts on the internet. I decided to post them here in my blog because they resonate with me in a lot of ways. I feel like I spend more time trying to explain how sick I am because on the outside I seem to look perfectly fine. Even when IContinue reading “The Struggle is Real”
Fighting Emotions
I woke up this morning like I always do. The last few weeks have been so heavy and I made it through, even though it was extremely difficult. I deal with feeling lonely, a lot, this is a different type of loneliness where I completely feel abandoned even though I know that I’m not. TheContinue reading “Fighting Emotions”
As long as I progress
There have been days that I get in my feelings about all of the issues going on with my health. Some days I have no idea as to why I am surprised and then there are days that I am in my “woe is me”. I’ve been having strange symptoms for years. I went fromContinue reading “As long as I progress”
For the family: Understanding Multiple Sclerosis
Multiple sclerosis (MS) is a chronic, often disabling disease that attacks the central nervous system (CNS), which comprises the brain, spinal cord, and optic nerves. This essay will delve into the complexities of MS, exploring its causes, symptoms, diagnosis, treatment, and the profound impact it has on the lives of millions worldwide. The root ofContinue reading “For the family: Understanding Multiple Sclerosis”
Happily Ever Amber 