May 9th, 2025 was the last day that I said I’ll see you again to my aunt. She’s 73 years old, so young to leave this earth, yet God called her home. She was the aunt that was involved in our lives in a major way. She and my mom were best friends, they didContinue reading “Grieving with Multiple Sclerosis”
Category Archives: autoimmune disease
Talking Just Isn’t The Same Anymore
The more I live out this new life with MS, I’m noticing that I’m having difficulty speaking. I could be expressing myself in conversation and lose what I wanted to say mid-sentence. There are times that in my brain I know exactly what I want to say, I can picture the words, I know whatContinue reading “Talking Just Isn’t The Same Anymore”
Fact: The Worst Feeling of MS is when my body doesn’t regulate temperature well.
Since I’m also going through menopause at 43, I had to learn the difference between a hot flash and MS heat intolerance. Both of them are miserable, both make you feel like crud. Hot flashes are shorter and they make me sweat. Heat intolerance for me is ongoing and you can feel the anxiety creepContinue reading “Fact: The Worst Feeling of MS is when my body doesn’t regulate temperature well.”
The Lie: It’s Not You It’s Me
“It’s not you, it’s me.” This is the start of the many breakup letters I’ve written out of my insecurities to my loving boyfriend. I don’t mean it. I never do. It seems like ever since MS reared its ugly head in my life, my hopes have dwindled and I’ve been consumed with insecurities. IContinue reading “The Lie: It’s Not You It’s Me”
The Struggle is Real
I found these two fun facts on the internet. I decided to post them here in my blog because they resonate with me in a lot of ways. I feel like I spend more time trying to explain how sick I am because on the outside I seem to look perfectly fine. Even when IContinue reading “The Struggle is Real”
Day 5: I Made it to the Finish Line
Yesterday was the last day of my first set of infusions. I was so drained afterwards that I was in bed by 6:30pm!! I never realized how exhausting muscle fatigue is. I’m thankful I wasn’t in much pain today but my legs felt like I’m walking around with potato bags attached to each leg. MyContinue reading “Day 5: I Made it to the Finish Line”
Day 4: Almost to the Finish Line
Day 4 down! One more to go!! I showed up for my infusion but my PA came to see me prior to starting because I was having tightness in my chest that I couldn’t explain. She thought maybe I should skip it my infusion and me (the needle hater) freaked out because I knew theContinue reading “Day 4: Almost to the Finish Line”
Day 3: From 0 to 10 My Pain Scale was 6!!
I woke up this morning feeling pretty good. My knees are still swollen and I’m having some difficulty walking. I was still suffering from major fatigue after all of that pain the past 2 days!! It made me extremely tired. I had a little difficulty walking with my balance and my legs felt really heavyContinue reading “Day 3: From 0 to 10 My Pain Scale was 6!!”
Day 2: The Pain was excruciating
I woke up in extreme pain this morning. I managed to work a half day as planned and then head over to the clinic to have my dose for the day. I can’t say that I was too thrilled. I was use to steroids providing relief but this time I felt like I was literallyContinue reading “Day 2: The Pain was excruciating”
Day 1: When Life’s Path Changes Direction
If I could give an example of my life, I would say I was driving on smooth pavement and suddenly switched lanes to a rocky road. Yes, it will still get me to the same location I’m going, it’s just going to be a rough ride, hard on my tires and a little pressure onContinue reading “Day 1: When Life’s Path Changes Direction”
Happily Ever Amber 