lupus – Happily Ever Amber

The Struggle is Real

I found these two fun facts on the internet. I decided to post them here in my blog because they resonate with me in a lot of ways. I feel like I spend more time trying to explain how sick I am because on the outside I seem to look perfectly fine. Even when IContinue reading “The Struggle is Real”

Day 5: I Made it to the Finish Line

Yesterday was the last day of my first set of infusions. I was so drained afterwards that I was in bed by 6:30pm!! I never realized how exhausting muscle fatigue is. I’m thankful I wasn’t in much pain today but my legs felt like I’m walking around with potato bags attached to each leg. MyContinue reading “Day 5: I Made it to the Finish Line”

Day 4: Almost to the Finish Line

Day 4 down! One more to go!! I showed up for my infusion but my PA came to see me prior to starting because I was having tightness in my chest that I couldn’t explain. She thought maybe I should skip it my infusion and me (the needle hater) freaked out because I knew theContinue reading “Day 4: Almost to the Finish Line”

Day 2: The Pain was excruciating

I woke up in extreme pain this morning. I managed to work a half day as planned and then head over to the clinic to have my dose for the day. I can’t say that I was too thrilled. I was use to steroids providing relief but this time I felt like I was literallyContinue reading “Day 2: The Pain was excruciating”

Day 1: When Life’s Path Changes Direction

If I could give an example of my life, I would say I was driving on smooth pavement and suddenly switched lanes to a rocky road. Yes, it will still get me to the same location I’m going, it’s just going to be a rough ride, hard on my tires and a little pressure onContinue reading “Day 1: When Life’s Path Changes Direction”

Battling the “Unseen” Disease

It’s been a while since I’ve written anything. Part of me wanted to really have a blog that talked about something super cool that could be useful to others. As I go through my most recent health challenges, I decided that I am going to blog about this journey. I can tell it’s already goingContinue reading “Battling the “Unseen” Disease”